Syngap1 UK was formed in 2019, we are a non-profit Community group. Our priority is to provide support to other families in the community, to collaborate with scientific researchers, and to host conferences to join together both families & professionals who share one common goal to explore Syngap1.
Come & meet the children who are at the heart of our community, their lives are dominated by the challenges they face on a daily basis through living with Syngap1 - they are the real Superheroes.
Here parents/carers can find sign posts to other websites that may provide additional help, support and advice.
Come & see some of the hard work the Syngap1 community have been undertaking to promote & raise awareness in order to support our cause.
Parents can explore resources that are available to use with their Syngap child. If you have some great resources to share then please get in touch & we would love to load them onto the site to share amongst the community & benefit other families.
As well as applying for grants/funds our community also works together to raise self- generated income to support families & fund research into Syngap1
The team are all from different backgrounds, and therefore contribute their own individual levels of skills & experiences.
Together we are working on behalf of the families to improve the quality of life for patients, parents, carers affected by Syngap1.
Syngap UK support the Patrick Wilde Centre in Edinburgh to undertake research into Syngap1, and also coordinate the UK Conference and research clinics.
Which brings together both families & professionals.
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