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researchers & family conference

Our History

Syngap1 UK was formed in 2019, we are a non-profit Community group. Our priority is to provide support to other families in the community, to collaborate with scientific researchers,  and to host conferences to join together both families & professionals who share one common goal to explore Syngap1.

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Meet our superheroes

Come & meet the children who are at the heart of our community, their lives are dominated by the challenges they face on a daily basis through living with Syngap1 - they are the real Superheroes.

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Useful links

Here parents/carers can find sign posts to other websites that may provide additional help, support and advice.

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Photo gallery

Come & see some of the hard work  the Syngap1 community have been undertaking  to promote & raise awareness in order to support our cause.

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what is syngap1?

Find out how Syngap1 effects individuals & families.

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Resources

  Parents can explore resources that are available to use with their Syngap child. If you have some great resources to share then please get in touch & we would love to load them onto the site to share amongst the community & benefit other families.

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Fundraising & SPONSORS

As well as applying for grants/funds our community also works together to raise self- generated income to support families & fund research into Syngap1

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NEWSLETTER'S

Check here for the monthly newsletter 

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SYNGAP uk map

Find out where our community is within the UK

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Meet Our Team

  The team are all from different backgrounds, and therefore contribute their own individual levels of skills & experiences.

Together we are working on behalf of the families to improve the quality of life for patients, parents, carers affected by Syngap1.

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RESEArch

  Syngap UK  support the Patrick Wilde Centre in Edinburgh to undertake research into Syngap1, and also coordinate the UK Conference and research clinics.

Which brings together both families & professionals.

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about us

  Find out more about our Constitution

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