BTG is a registered 501c3 Charity in the U.S.A and was formed in 2014.
In 2016 they held the first ever International Syngap1 Conference in Houston Texas, bringing together both Researchers and Families from all over the globe.
It's following on from this Conference that a UK Facebook page was created on account of the increase in the number of families in UK receiving a diagnosis of Syngap1.
In 2019 the UK chapter of BTG was established with our first UK Conference & research clinics being held the same year in Edinburgh.
Our next Conference & Research clinics are scheduled to take place October 2021
To all those who speak English, and wish to participate in the on going Neuro GD study with the Patrick Wild Center, its not too late , please read leaflet get in touch.