Oscar is a 4 year old, characterful little boy who despite being non verbal never fails to make us laugh! He loves nursery rhymes, climbing (especially things that he shouldn’t), water and sensory objects. Oscar’s latest love is being outdoors on a walk or even in the car, he would be out all day if he could and is very disgruntled to return home.
Oscar was diagnosed with epilepsy near to his second birthday with the first visual signs being eye rolling around 14 months old. Subsequently he was diagnosed with Syngap1 eight months later. He is currently on a ketogenic diet which has helped reduce some of his seizures.
Whilst Oscar can present a challenge with his behaviour, he is generally a loving and affectionate boy who loves to snuggle up under a blanket and cuddle. We are very grateful for the light that Oscar brings and for opening our eyes to the many different ways of learning and communication