The Trust aims to promote awareness of Syngap1, through both education & Research and to support families of children with Syngap1.
The Trust shall be ran by three unpaid volunteers, who shall be adults that do not hold any Trust assets.
The Trustees shall be agreed and recorded at Annual General Meetings.
The Trustees assess applications for money from research bodies, fiscal sponsors and individuals, and distribute amounts based on available funds in accordance with the Objects of this Constitution.
The Trustees shall appoint a Treasurer & Secretary and may also appoint Web design & a family liaison officer.
Upon one year's of accounts the Trustees will apply for and maintain Registration of the Trust with HM Government Charity Commission, and apply for Gift Aid.
Trustees will keep records of the Affairs of the Trust that are discussed during meetings.
The Treasurer monitors and distributes voluntary income in agreement with the Trustees and in accordance with the Objects of the Trust..
The treasurer will maintain Accounts of income and expenditure, through a bank account in the name of the BTG UK.
The Trust promotes awareness of Syngap1 through any legal means it chooses.
Promoting awareness of Syngap 1 includes seeking opportunities to work alongside Research companies , gain sponsorship for research and conferences, to raise awareness of the condition amongst parents of children with SYNGAP1, and provide support to those families living with Syngap1.
The Trustees, and all other Volunteers accepted by the Trustees will be members of the Trust, and can make suggestions at Annual General Meetings.
The Trustees and Treasurer shall meet at least quarterly to fulfill the objects of this Constitution.
The Trustees will hold the Trust's Annual Meeting via video link to which all Members are invited.
The Trustees and Treasurer will present Members with their agreed Annual Report of Affairs, Financial Statement and any proposals for amending this Constitution.
The Trust is lead from within the UK & is ran on a non-profit basis